The Boy Whose Skin Fell Off (2004)
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
Director: Patrick Collerton
http://www.channel4.com/programmes/the-boy-whose-skin-fell-off
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Jonny Kennedy as |
| Directing | Patrick Collerton | Director |
| Production | Patrick Collerton | Producer |
| Production | Eric Harwood | Executive Producer |
| Crew | Tony Coldwell | Cinematography |
| Crew | Richard Ranken | Cinematography |
| Editing | Nick Fenton | Editor |
| Sound | Tommy Hair | Sound |
| Sound | Bob Jackson | Sound Mixer |
| Sound | Bob Newton | Sound |
| Camera | Michael Brennan | Aerial Camera |
| Camera | Peter Thompson | Aerial Camera |
| Editing | Sue Giovanni | Editor |
| Editing | John McMullin | Additional Editor |
